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Wednesday, June 28th

Great news! When the doctors did their rounds this morning, we were told that Holden's sleep study went great and they had no concerns. One doctor actually said it was one of the best sleep studies they'd ever seen! This means his oxygen cannula comes off and we don't need to take him home on oxygen. Woohoo! Also, they did an ultrasound of his kidneys, since he's had high blood pressure the past few days and they said that everything came back good. You have no clue how much I needed to hear that.

Also, they moved us back up to the 8th floor today, which we were super excited about. The 8th floor is the floor our first room was on and we've kind of missed it ever since we moved. Our room in the PICU was slightly smaller and came with a few rules, but being in the NICU was rough. While we had so many amazing nurses there (& really in any room we've been in), the rules were pretty strict. There was no bathroom in our room, so we used a community bathroom/shower. We couldn't have any food in our room, so we had to go down to this lounge area to eat. We couldn't have more than 4 people total in our room (aside from Holden). Guests, including Aurora, had to be out by 7 pm each night. And we couldn't have anything touching the floor (like our bags, etc.). Also, our room was quite a bit smaller than the others, so we basically went down there with a bunch of crap and had to sift through and take most of it out to our car. First world problems, I know, but it just took some getting used to and we pretty much got in "trouble" for breaking one of the above rules each day that we were there. Such rebels, right? So, needless to say, we were pretty excited to be movin' on up!

The word on the street is that we could possibly, maaaybe go home tomorrow or Friday, so we're hopeful. Holden still needs to have one more swallow study to see if his swallowing has improved, which could mean he wouldn't need to go home with his feeding tube. He'll also have to have a car seat study before we can leave, too. 

Here's some pictures of Holden in his new digs...
My son was born with Pierre Robin Sequence (PRS). See details of our journey here. | jennafromtheblog.com
My son was born with Pierre Robin Sequence (PRS). See details of our journey here. | jennafromtheblog.com
My son was born with Pierre Robin Sequence (PRS). See details of our journey here. | jennafromtheblog.com
My son was born with Pierre Robin Sequence (PRS). See details of our journey here. | jennafromtheblog.com
My son was born with Pierre Robin Sequence (PRS). See details of our journey here. | jennafromtheblog.com

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